We planned on taking the tube out today.  I don't count on plans made very much because Carter usually has other ideas.  Good news, Carter liked the plan.  We extubated him around 3:15 today and so far so good.  It's now 5:40, just got back a great gas!  Just a little nasal cannula and hopefully we can shed that soon!  Plans are in the works for Boston and we are moving forward.  working on how to get there and where to stay when we do.  I am very excited and thankful that many of our docs here are on board with our decision.  I didn't really expect that.  I will journal about Boston/Omegaven in another journal.   Hopefully we will be moved on the GI floor tomorrow and out of ICU.

p.s. Carter had a very big smile when he realized the tube was out!

Today was a good.  Carter is very tired, breathing on our will do that.  We got the ok to move to the GI floor today, just waiting on a bed.  They are all full downstairs.  Hopefully they will have tomorrow and we can get out of ICU.  I am thinking just a couple of days on GI floor then home. I really want to take Carter home before we leave for Boston on the 12th.  We have so much packing and preparations that need to be done.  Can't do that sitting in the hospital and I have to limit the opportunity for any infections.  We have to pray to keep him healthy in the next 10 days. Still working on transportation and housing for Boston.

Carter was moved out of ICU today, well acutally at 4:00 this morning.  They woke Sean up to move, he was not too happy.  But none the less, we are the peds floor.  They are working on getting Carter off his cannula.  Sounds like they are planning to send him home maybe Monday.  We'll see.  Otherwise, he is doing well.  Laughing up a storm.  Mom discovered yesterday that he is a little ticklish.  He just gets cuter everyday.

well, Carter stayed healthy another week!!!!  Prayers Answered I assure you.  We had a little scare...his temp was low.  This was also sign of an infection when Carter was in the NICU.  I asked that he be put on antibiotics...the usual Vancomycin.  They were discontinued on friday.  Two days to avoid an infection before Boston.  I think he can do it.  It's late saturday so almost there.  I am frantically washing clothes to get packed.  We can only take 40 pounds on the plane, so I am having to pack very carefully. I decided to break it up into 4 small shoulder bags.  Maybe they won't be as suspious as a huge suitcase.  I am packing our luggage for mom to bring.  Not sure exactly what weather we will have, so trying to plan for everything.  Also, trying to pick up the house as I go.  Our house and our yard have taken a beaten this past 9 months.  I am also going to try and take down the Christmas tree before I leave.  For those of you who don't know.... we never took down the tree hoping Carter would be able to come home and see it.  When he came home, it's was so over whelming caring for him that we forgot to take pictures with the tree and then he got sick again, so the tree still stands tall and fully decorated.  Oh how the time just goes by and priorites change.  It will most likely be full summertime when we return and I can't bear the thought of that tree still up.  Besides, I don't want to have to dust my ornaments.  Everything is still on for Monday.  I know Sean is getting nervous and the reality of Carter and I being gone is starting to sink in.  I haven't allowed myself to think about it. Too much to do. Well, just heard the dryer buzz, back to laundry.

Well, time keeps on ticking... in a mere 18 hours we will be on our way to a healthy liver.  I just keep rereading all the success stories and praying I can add Carter to that list.  I think we have everything we need.  One more trip to Wal Mart will complete the packing.  I have the fun task on trying to sqeeze in our taxes today. Just what I wanted to do.  I think I see an extension in our future, but don't tell Sean.  Sean is with Carter today and he brother is also coming up to see him.  He said Carter had a great inght and his blood gas was 58 this morning!!!!  Awesome.  It has been slowly coming down thank God.  I really have to thank our Pulmonary Guys- Copenhaver and Gelfand.  They really gave Carter a lot of room to help keep him off CPAP or back on the vent.  They have been wonderful.  We will a chest x-ray tonight and full labs in the morning for heading to Love Field at 7 am.  I will headed to the hospital later this afternoon.  A couple of projects to design for clients and of course taxes and then I think I'm ready. Keep praying.  It isn't official until we land in Boston!